JUMP AND SWIM AWAY!!
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A new category.
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Thanks for the shout out.
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Two piers, a finish line, and two miles of ocean in between.
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Dear Crazed EDSer,
Thanks for the shout-out.
If only in your fantasies.
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At the Global Genes 2019 RARE Drug Development Symposium.
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A great day of my life.
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Not trying is (yawn) boring.
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Mr. Darcy, where are you?
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What caused my healing bonanza? Let’s speculate!
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At the turn of the year, McGuff Compounding Pharmacy ran out of ascorbic acid. January came, and everyone wanted more. Including me. I had to get in the queue and wait. 😡
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What I am thankful for . . .
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When people have the same genetic defect, this causes them to have similar facial features.
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Global Genes Rare Patient Advocacy Summit
I go every year. This conference is my favorite place to be someone who was born sick. You can watch the videos here.
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Bones, collagen and joints need impact.
At home, I do jumping jacks, ballet leaps, run in place, occasionally do a few burpees and sometimes run around the neighborhood for a bit.
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