Overcoming Ehlers-Danlos — Less Flexible

Um, EDS is Common?

Um, EDS is Common?

Oh, for sure!

Explaining EDS, Diagnosis & DNAMadora PenningtonNovember 12, 2019

On Low Dose Naltrexone

On Low Dose Naltrexone

For pain, immunity and opioid recovery.

Low Dose Naltrexone, Long Term OpiatesMadora PenningtonNovember 5, 2019

My Op-Ed in the Los Angeles Times

My Op-Ed in the Los Angeles Times

And a message of hope for opiate, opioid, heroin, fentanyl, etc. users.

Coming to Terms, Pain & Disability, Long Term Opiates, Anxiety & Depression, My...Madora PenningtonOctober 27, 2019

Hey Sia! You, Too?

Hey Sia! You, Too?

Ehlers-Danlos is officially cool.

Anxiety & Depression, Brain & Nervous System, Exercise & Posture, Fasting, Fatigue, Look Good & Have Fun, Low Dose Naltrexone, PTSD & Violence, Auto-Immune IssuesMadora PenningtonOctober 10, 2019

My (Formerly Un) Stable Spine

My (Formerly Un) Stable Spine

Addressing instability with strengthening.

Exercise & Posture, My..., Spine ProblemsMadora PenningtonOctober 3, 2019

FDA Drug Approval Based on Real World Evidence

FDA Drug Approval Based on Real World Evidence

This is exciting.🤗

Coming to Terms, Look Good & Have Fun, Un-DisabledMadora PenningtonSeptember 26, 2019

On Healing By Extended Fasting

On Healing By Extended Fasting

I feel f*cking awesome.

On..., Fasting, Long Term Opiates, Healing & Hope, Mast Cell (Urticaria)Madora PenningtonSeptember 17, 2019

My Relationship With Dr. Plance

My Relationship With Dr. Plance

Then and now.

Injecting Vitamin C, Un-Disabled, My..., PRP & Prolotherapy, Exercise & Posture, Healing & Hope, Hopelessness & SuicideMadora PenningtonSeptember 4, 2019

On the “Connective Tissue Advantage” 🙄

On the “Connective Tissue Advantage” 🙄

by the British Society for Paediatric and Adolescent Rheumatology.

Childhood & EDS, On..., Hopelessness & SuicideMadora PenningtonAugust 29, 2019

2019 Dwight Crum Pier-to-Pier

2019 Dwight Crum Pier-to-Pier

Hat down, cross town, living like a rock star.

The Ocean, Music & Lyrics, Dysautonomia & POTS, Ehlers-Digestion ProblemsMadora PenningtonAugust 21, 2019Ocean Race

Hey, Jameela!

Hey, Jameela!

Thanks for the shout out.

Explaining EDS, Jumping For Joy, Bone Density, Doctors & Hospitals, Low Dose Naltrexone, Love & Luck, Exercise & Posture, Dysautonomia & POTS, Mast Cell (Urticaria)Madora PenningtonAugust 14, 2019

Gurl, You Kinda Are an Elite Athlete

Gurl, You Kinda Are an Elite Athlete

Two piers, a finish line, and two miles of ocean in between.

The Ocean, Jumping For Joy, Spine Problems, Coming to Terms, Hopelessness & Suicide, Music & LyricsMadora PenningtonAugust 8, 2019

Searching for My Molecular Diagnosis - Round 7

Searching for My Molecular Diagnosis - Round 7

Dear Crazed EDSer,
Thanks for the shout-out.

Coming to Terms, Jumping For Joy, Diagnosis & DNA, Low Dose Naltrexone, Searching For..., Un-Disabled, Hopelessness & Suicide, Injecting Vitamin C, Pilates & Yoga, Exercise & PostureMadora PenningtonJuly 31, 2019

The Problem With Pilates and Yoga

The Problem With Pilates and Yoga

If you have Ehlers-Danlos Syndrome.

Exercise & Posture, Pilates & Yoga, Pain & Disability, Bone DensityMadora PenningtonJuly 24, 2019

Gurl, You Are An Elite Athlete

Gurl, You Are An Elite Athlete

If only in your fantasies.

The Ocean, Look Good & Have Fun, Jumping For JoyMadora PenningtonJuly 17, 2019Ocean Race

Let’s Break Down Real Housewives of Beverly Hills</em> - Season 9

Let’s Break Down Real Housewives of Beverly Hills - Season 9

No one should submit to being a punching bag for others.

Let’s... !, Look Good & Have Fun, Exercise & PostureMadora PenningtonJuly 11, 2019Comment

The Day I Got Off Long-Term Opiates

The Day I Got Off Long-Term Opiates

Repost: When the last of my last tiny opiate dose metabolized out.

Long Term OpiatesMadora PenningtonJuly 4, 2019OffOpiates

On Where to Start with Injecting C

On Where to Start with Injecting C

Not that I am giving medical advice or anything.

On..., Injecting Vitamin C, Dysautonomia & POTS, The Ocean, Brain & Nervous System, Healing & HopeMadora PenningtonJune 27, 2019

Let’s Learn About Rare Genetic Disorders

Let’s Learn About Rare Genetic Disorders

To understand HEDS better.

Let’s... !, Un-Disabled, Diagnosis & DNAMadora PenningtonJune 20, 2019

On Repurposing Drugs for Rare Disease

On Repurposing Drugs for Rare Disease

At the Global Genes 2019 RARE Drug Development Symposium.

Diagnosis & DNA, Jumping For Joy, Injecting Vitamin C, Look Good & Have Fun, On..., Travel & Language, Un-Disabled, FatigueMadora PenningtonJune 13, 2019